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Transmuting a grim reality to a Dream: One juvenile diabetic’s despondence and the need for C.G.M.
Dreams and Reality
As of now, the Community for Glucose Management (C.G.M.) is still a far-off dream. It’s just me, learning every aspect of blogging, SEO, social media networking, and writing to convey my vision to the world. Before diving into my dreams for the future, I want to share the reality of my past and why achieving these dreams is so important to me.
My Personal Journey
I was diagnosed with type 1 diabetes just before turning 10 years old in 2001. The doctors took a stern approach to emphasize the importance of regulating my diet and lifestyle for controlled blood sugar levels. It felt like a good cop, bad cop setup. The endocrinologist would scare me with warnings about complications, while the nutritionist offered dietary advice that didn’t quite work for me. Despite my parents’ and my best efforts, I struggled to regulate my blood sugar.
In those early years, I was always hungry, my blood sugar was dangerously unregulated, and the warnings from doctors seemed more like threats. I felt punished rather than helped by nurses at school and even my parents at home. This led to a deep sense of disillusionment and alienation. I went through puberty feeling isolated, misled by gruff doctors and nurses, and emotionally distant from my peers and loved ones. This disillusionment and a genetic predisposition to depression set me on a self-destructive path.
The Need for C.G.M.
I know my reactions and self-destructive actions were my choices, but my story is not unique. Many type 1 diabetics face similar struggles. I have lived with this condition for a long time, I have gone through many different management protocols. There were many dark years when I lacked the drive or reason to manage my blood sugar. I felt alone, misguided, and without hope. However, I never stopped trying, and eventually, things got better.
Life keeps going, and it always demands effort, but it does get better. As my life improved, I felt called to help other type 1 diabetics avoid the isolation I experienced. This is the driving force behind C.G.M.
Vision for the Future
My short- to mid-term goals for C.G.M. include starting a series of conversations to bring diabetics together. I envision this community growing into a global resource for diabetics seeking wisdom, encouragement, and support. As the online community grows, I will also work on building a local community to create a blueprint for effective grassroots diabetic support networks.
I aim for these online discussions to ripple out into tangible support for diabetics, providing necessities and assistance at the ground level. For this community to grow, I need the help of every voice with something to say.
Call to Action
I am reaching out to all diabetics who want to discuss their experiences. I want to hear from you. How have doctors’ demeanors and tactics affected your care? What treatment protocols worked best for you? Has anybody been successful with fingerpricks and multiple injections? What about access to healthcare, have you ever gone without it, and how did you survive? Do you want to hear more of my story, if so, which parts?
Thank you for taking the time to read this. It means the world that you took the time to help this community grow. I look forward to hearing from you.
— Jayymo777
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